Niamh (niamhiblog), Adrenal Bio
Full link to my blog: https://niamhiblog.wordpress.com/ I will never forget the day my hair loss went from “God, don’t I leave a lot of hair around the apartment” to “F***!!!! ”. I’d always considered...
View ArticleJulie B, Adrenal Bio
Hello, 47 year old female with two adrenal adenomas. Gaining weight like crazy, feeling tired, can not sleep, pitting edema in legs, bruise easily, pain in side, back, joints….and many other things....
View ArticleRaquel O (Raquel8a) Adrenal Bio
I’m not sure how long I’ve had Cushing’s. I think it’s been a slow progression for about 20 years. In April my father passed away and we were on our way to Church for his mass. We got smashed from...
View ArticleDanielle, Undiagnosed (Cyclical Cushing’s)
May-Aug 2013 Age 17-18 I started noticing that i was losing weight. My arms and legs looked like toothpicks and i had bruises everywhere. i was fairly active i would run and lift weights everyday...
View ArticleAlex C (Alex C), Undiagnosed Bio
Hi, My name is alex and i honestly have no idea what’s wrong with me. about 5 years ago i became ill, all of a sudden went from a healthy strong active person, to feeling weak, tired, i gained weight,...
View ArticleVicky (Vicjy), Adrenal Bio
Hi. For the last couple of years I have had different symptoms. I’m 45 and feel like I’m 70. I think it started about 3 years ago. I would break or fracture something and it would take forever to...
View ArticleMika, Undiagnosed Bio
I’m 16, going on 17… and I think I’m close to being diagnosed with Cushings. Quite frankly its scaring me so I’ll just do my best to get my story out there. I’ve always kind of been on the heavier...
View ArticleCyndi K (What Now?) Undiagnosed Bio
So – 55 years of age and it has taken me ….4 years to actually get to this point, but I suspect if diagnoses is confirmed that its been more like 10 years since the first symptom. I am tired, kind...
View ArticleBeth, Undiagnosed Bio
I’m being tested for Cushing disease, after having some symptoms, one doctor says I don’t have it because the first Urine test is normal, but I’ve since done another urine test which is higher than...
View ArticleGiving Thanks: 36 Years Post-Op
Today is the 36th anniversary of my pituitary surgery at NIH. As one can imagine, it hasn’t been all happiness and light. Most of my journey has been documented here and on the message boards – and...
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